We have created this website to bring people who are affected and involved with Morquio B (MPS IVB) together so they may form contacts, share information, and help us in finding a treatment for this rare disease.
It is our goal to raise funds for research and develop a better understanding of this disease. It is our hope that this research will lead to a treatment.
It is unclear how many people are actually affected with Morquio B because there is no known registry. We are here to be a link for those who are affected to some very knowledgeable researchers who are already studying this disease.
If you wish to be a part of our efforts, let us know how we can contact you.
Together we will find a treatment.
Please click on this link to watch a wonderful speech made by Arthur, an adult living with Morquio B, at our Second Annual Gala Fundraiser "An Evening in Italy"
News
We Have Met Our First GoalApr 20, 2012
We have just funded our first research grant to The University of British Columbia for the first formal registry for Morquio B! The success of this registry will depend on the participation of everyone in the Morquio B community. We will post more information as we receive it. Thank you to everyone who has supported us.
Research Proposal RequestDec 20, 2011
We are pleased to announce our new research grant request.
This grant will be for $50,000.00 over one year, with a funding decision to be announced March 30, 2012. Application deadline is February 29, 2012. For more information, visit www.mpssociety.ca under the heading Research Grants.
Mamma Mia!Oct 26, 2011
What an amazing night! Journey of Hope's "An Evening In Italy" was perfect in every way! Thank you to everyone who donated their time to this event. Thank you to our friends, new and old, for their endless support. We will find a treatment. More posts to come as we find out how much we raised!
Photo Gallery of Event
Tickets Are Here!July 8th, 2011
Tickets are now available for An Evening in Italy gala dinner and silent auction!
Make sure to purchase them before September 15th to be entered into a draw for one free night at the Executive Airport Plaza Hotel. This prize was generously donated by the hotel in support of this year's fundraiser.
Gala Dinner and Silent Auction
Pub Night a Huge Success!Apr 11, 2011
Thanks to everyone who put together the friends and family pub night for us last Saturday! Through generous contributions, we were able to raise close to $2,800 towards research. Everyone had a great time, and the support we received was amazing!
Next Fund Raising EventJan 24, 2011
Our next fundraiser will be on October 22, 2011 at The Executive Airport Plaza Hotel and Conference Centre in Richmond, BC.
Gala Dinner and Silent Auction
Research Grant Goes Live!Dec 1st, 2010
We are very pleased to announce that we have just put out our first request for applications to fund research for MPS IVB. The research grant amount is $40,000.00 and the deadline for applications is January 31, 2011.
For more information please visit this link
A New LookNov 15th, 2010
Web Development by
Dave Thomas [DT Web Solutions]
A Very Starry NightOct 2nd, 2010
Our first fund raiser event, a
Starry Night was a great success! Thank you to everyone who participated. We were able to raise over $20,000.00 towards funding our first research project.
Click here for the photos
Check back soon. We will have more information about up coming events.