New Research Project in Progress!

Are you interested in sharing your experiences with Morquio B and GM1 Gangliosidosis and connecting with others in the community? Please consider participating in our focus groups hosted by the BC Children’s Hospital Research Team.

PARTICIPATE IN OUR FOCUS GROUPS

What is Morquio B?

Morquio B is a rare degenerative genetic condition that affects mainly bones including the spine, cartilage and other organs, including the eyes and heart. There is no treatment, and no cure.

Learn more about Morquio B

Latest News

Interested in sharing your experiences with Morquio B and connecting with the community?

The aim of this project is to gather the stories and lived experiences of patients and caregivers within the Morquio B and GM1 gangliosidosis...

First orthopedic treatment case report for Morquio B just released

A Patient Case Study has just been released by Dr. Anthony Cooper and Dr. Sylvia Stockler, BCCH, highlighting the diagnostic journey of a patient...

Developing a Core Outcomes Set for Morquio B and GM1 Gangliosidosis

Dr. Stockler and her research team are currently in the process of obtaining ethics approval for an international Morquio B and GM1 gangliosidosis...

2024 Patient Case Study

A Patient Case Study is soon to be released by Dr. Anthony Cooper and Dr. Sylvia Stockler, BCCH, highlighting the diagnostic journey of a patient...

Published results from Patient Survey

Thank you to all who participated! Click here to read the results -> Morquio B Patient Caregiver Survey

CALL FOR HELP: Morquio B Community in Europe

Dr. Stockler is ready to move forward with further studies for Morquio B. She has asked that I request all patients affected with Morquio B in...

7th Annual Gala date set!

Please join us for our 7th Annual Gala for Morquio B "A Tribute to The Beatles", Oct 15th at the Westin Wall Centre, Vancouver Airport. We are very...

The evening was truly magical!

Thank you to everyone who supported our 6th Annual Gala for Morquio B, A Magical Evening. This year's campaign raised over $40,000 and was once...

2015 Gala – A Magical Evening

Join us for our 6th Annual Gala Dinner / Silent Auction for Morquio B benefitting UBC Medicine on October 17, 2015 at the Westin Wall Centre,...

Morquio Fighterz

www.morquiofighterz.wix.com/mobileapp I am overwhelmed and so very impressed by the efforts of a group of students at Wamogo Regional High School. A...